• Presumed Consent

    Last night the Welsh Assembly agreed a new policy of presumed consent with regard to organ donation. Now, instead of opting to become an organ donor, in Wales it will be presumed that a person is willing to donate their organs after death, unless they have opted out.

    I find this one an incredibly tough call, but I think that the Welsh Assembly is wrong. I’m opposed to presumed consent. I think it is wrong.

    And yet I’m in favour of organ donation. I am on the register of organ donors. I recently had to renew my driving license and happily ticked the box indicating that I would be happy to consent to my organs being used to give life to someone else after I die.

    My problem with presumed consent is that I have a problem with presumed anything. The dominant discourse in medical ethics hitherto has been around the the notion of informed consent. Presumed consent undermines this significantly. It also changes the relationship between the state and the individual in a way that makes me feel very uncomfortable.

    It seems to me that the gift of organs after one has died is one of the greatest gifts that can be made. This legislation takes away from that sense of giftedness.

    I’m opposed on pastoral grounds too. For many relatives the idea that they can consent to the donation of healthy organs from someone who is at the point of death is a wonderful and powerful thing. If the decision is no longer theirs then something has gone which has mattered to many.

    If I needed an organ donation then I’ve no doubt I would long for anything that made more organs available. However, if I ask myself whether I would want to receive an organ from someone without knowing whether or not they wanted that procedure to happen I find myself having to think long and hard. Would I want an organ from someone who’s relatives were opposed to the organ removal? Organ donation can currently help people’s grieving processes. It now has the potential to complicate grief immesurably for some.

    People often don’t know what it will feel like when someone dies. The ability to make decisions at that time is crucial. Removing the possibility of decision making concerns me greatly. Some urgently want whatever good that can come from a death to come to pass. However others don’t want a body to be touched more th an is necessary either. I’ve no doubt that some will see this as a violation and the way that they will cope with the death in those circumstances is entirely unknown to us but cannot be easy.

    We are not simply flesh that the state owns and from which it can harvest. Somehow I can’t get away from the idea that we are more than that and that our laws should recognise that.

    I’m not really aware of how the debate about this has gone in Wales. I’ve been paying attention to other moral discussions here recently. These are just my initial instictive reactions to news reports today.

    As I said at the outset, I don’t find that a comfortable position to come to or to articulate. However, uncomfortable decisions are precisely what life makes us make.

    What do you think?

7 responses to “Twitter and the Church”

  1. Justin Avatar

    First, congratulations Kelvin on your appointment as I&C Board convenor, and thanks to you and all who contributed to the SEC’s Synod Twitter coverage, which worked really well.

    Some thoughts:

    Next year, as was suggested by some of the Synod ‘Twitterarti’ we should have a proper Synod 2009 Twitter account, like that set up by the Church of Scotland for their Assembly. And it needs to be integrated into the Synod pages on the Provincial website from the outset.

    It would also be good to integrate the #pisky Twitter stream into the Provincial site on a permanent basis, or to set up an SEC account for that purpose. I would also suggest making the site’s SEC blogroll more prominent. And the SEC Flickr streams.

    I understand the concerns some have about the impossibility of monitoring what’s said on Twitter and the blogosphere, and its undeniable that sometimes people will say insensitive and daft things that will offend and hurt.

    But that is part of the very nature of online communication. The days when organisations could manage their channels of communication through press releases and a limited number of printed publications are gone. The web has democratised communications media, offering a low cost platform for all members of an organisation: the concept of gatekeepers at the top approving and filtering information is redundant.

    Like all organisations the SEC needs to embrace and engage with things like Twitter, blogs and other social networking tools, or people will simply bypass the ‘official’ channels and jump straight to where the real conversation is happening, like your blog.

    It’s not just Twitter we need to embrace, but the existing web platforms we’ve already got in place. I’ve been honoured to be asked to develop a number of websites for the SEC over the past couple of years, including the Provincial site and a few diocesan sites.

    Some good use has been made of these – Kennedy in particular has been doing some great stuff on the Glasgow site over the past few weeks. But my perception is that the web still plays a very muted second fiddle to print as a means of communication within our church.

    At Provincial level I don’t see why all the good news material should be kept for inspires magazine. I think it should go straight onto the website as soon as it becomes available. If it’s kept in inspires nobody outside the church can see what’s going on. I don’t think subscription rates to the magazine would be affected at all if inspires material also appeared online: most commercial magazines have found that putting selected material online serves to promote rather than threaten their presence on the newstands. There are now more printed magazines than ever, and they all have websites.

    I think we should allow the boards and committees to post their material direct to the SEC News section. That would, I think, encourage far more of them to contribute their material to the website.

    The same applies at diocesan level: nearly all the good news is kept back for the diocesan magazines, and almost none of it makes its way to the website (again, I know Kennedy is doing his best for the Glasgow site).

    News and events functionality, RSS feeds, photo galleries: they are all there on the diocesan websites waiting to be used. I have to be frank and say that communicating our diocesan news through rather poorly designed newsletters (where the Comic-Sans wars are still taking place) received only by insiders, makes us look very old-fashioned and insular.

    I realise that sounds rather harsh, and that people are volunteering their time to put together the magazines. But I don’t see why we are spending so much time and money doing it that way when the web is there waiting to be used. I love the church and want it to grow, not continue to decline. The web is our friend, offering so many exciting possibilities, and its importance as a means of communication will not be grasped unless we keep banging on about it!

    My tuppenceworth. Very interested to hear what others think. Congrats again and best wishes in the new post.

  2. gaielle Avatar
    gaielle

    Congrats and Best Wishes indeed, Kelvin. A most demanding role and requirement.

    Encouraged by Justin, I shall add a penny-ha’pennies-worth.

    Communication in the world of today is a serious and complex undertaking, isn’t it, not least because there are so many across-generation and accessibilty issues involved, leaving the ‘non-tech’ community disenfranchised if the ‘old fashioned’ hard copy approach is neglected – or perceived to be neglected. Hard copy will continue to be an essential medium for a while yet – and rightly so.

    But equally important, and especially for reaching, including and empowering the youngest generations in the SEC, is the recognition and inclusion of new and newest technologies. Perhaps the teenagers in our midst have some useful insights to offer us for Developing Mission Outreach. The Good News was given to us to share – with everyone.

    Good – effective – communication is a great thing when you encounter it. Rare Creature tho it be. Fully – and clearly intended to BE – fully inclusive, and therefore encompassing and using ALL practical and available methods of communication.

    Problems in achieving Good Communication so often seem to be due to omission, oversight and a lack of appreciation of The Need To Try.

    So, for instance, I Receive Information From Other, I process this internally with every intention that my Final Response will then be shared comprehensively – but I first neglected to Assure The Other that I had Actually Understood What They Were Saying. In consequence the Information I have Taken On Board may be incomplete or flawed – hence I have (inadvertently no doubt) neglected that very important step of Ensuring My Understanding Of Information Matched what Was Being Said…….

    “What Is Said”, what is “Intended To Be Heard”, “What Is Heard” and “What Is Understood” are frequently 4 different things. However, effective/”good” communication requires a thorough appreciation of such likely mis-match, and also requires enormous strategic endeavour (until the skill becomes second nature) to outwit the intervention of MisUnderstanding.

    As with anything in life, a little digging, hoeing, watering, general nurture and attention will reap a fine result. It takes time, and it takes effort. Such, however, are well worth investment.

    But you will know these things. There is no need for me to be teaching you to suck eggs. I was just mulling out loud.

    All Very Best Wishes for balancing the new hat. (I assume the new post includes a hat ?)

  3. gaielle Avatar
    gaielle

    PS. If there is currently no hat, maybe we could invent one…………..

  4. Kennedy Avatar
    Kennedy

    Perhaps one of our issues is that in the absence of any centrally provided forums for discussion – eg. we don’t normally have a letters page in Inspires – then the blogs and other social media just step in and provide the forum for the sort of discussion that people obviously seek.

    If staff at GSO aren’t involved then the discussion is the poorer for that.

  5. jaye richards Avatar

    Just a little point, and I’m curious as to your thoughts on this, but how would you feel about someone tweeting during , say, one of your sermons or during a particularly uplifting piece of music ? is there a time and a place for this kind of communication, and might this include a religious service

  6. Kelvin Avatar
    Kelvin

    I’d be bothered if someone was disturbing others with their tweeting. However, I was chastened a couple of years ago when I became a little distracted by someone near the front apparently unable to sit still and seeming to send lots of text messages.

    It turned out however that he had the whole bible on his mobile phone and was simply looking up the passages as they were being talked about.

    So, I’m not bothered about discreet twittering, I don’t think, though someone might well choose not to twitter in order to be able to concentrate more on what was going on. Part of a spiritual life in most traditions is about learning not to be distracted sometimes, and choosing not to be distracted during worship would be an admirable path to try to follow.

  7. jaye richards Avatar

    I have to admit to being disturbed sometimes during conference presentations by those around me twittering, although I do it myself so perhaps I shouldn’t complain ! I do think there’s a time and a place though, and for me, anyway, a sacred service is not the place to tweet from.

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