• Brexit – Five First Quick Thoughts

    • My first thoughts on waking to the news of the result of the referendum on membership of the EU are not with the markets nor about sovereignty but with individuals. In particular, my thoughts are with the considerable numbers of members of my own congregation who have come from the rest of the EU to make a home here and indeed those who have moved the other way and who are living in other European countries. There will be considerable numbers of people feeling very uncertain about their own place in the world.
    • My second concern lies with those who will be the poorer for this decision. Financial volatility seems destined to affect the poor disproportionately. So far I hear no discourse in the media about the least financially secure. One of the reasons that this has happened is that there has been a collapse in trust in the ability politicians in much of the UK to speak for policies that would benefit most of the people.
    • I don’t think that the economic questions facing Scotland got any easier overnight. The calls for a second independence referendum are surely coming our way but on what terms? A Scotland in Europe hitched to a pound out of Europe? An independent Scotland committed to a Europe that fractures even more? Neither position is terribly attractive. It seems to me that there will be further attempts across Europe to persuade countries to leave the EU. That becomes much more likely after this vote.
    • I fear that there are more referendums heading our way whilst hating that way of making political decisions. We have representative democracy so that our representatives get to slug things out primarily so we don’t have to do so ourselves. Sadly I suspect there may be quite a lot of anger coming the way of our politicians. To some extent this result reflects the existence of quite a lot of anger already. However, politicians stand between the tyrant and the mob keeping both at bay.
    • The most frightening thing I saw over the last few days was the relatively powerful in the country having no contact at all with the disaffected majority. Again and again I heard people of the intelligentsia (a group I’d have to acknowledge I belong to as a card carrying member) saying that they simply knew no-one at all who wanted to leave and didn’t believe that it could possibly happen. We are divided and in ways I fear.

    There will be more to say later.

    Very much more.

9 responses to “Biobank – an ethical question”

  1. Rev Ruth Avatar

    I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

  2. Raspberry Rabbit Avatar

    I haven’t been asked. Radical foreign clerics must not be on the list.

    I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

    RR

  3. Tim Avatar

    Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

    A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

  4. chris Avatar

    We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

  5. asphodeline Avatar
    asphodeline

    Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

  6. kelvin Avatar
    kelvin

    I have not seen Heroes. Is it about eugenics?

  7. asphodeline Avatar
    asphodeline

    Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

  8. kelvin Avatar
    kelvin

    Ah, I see why you associated it with me.

  9. Andrew Avatar
    Andrew

    My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

    I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

    What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

    The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

    If you get one of these invitation say no and tell them why — or better still rip it up.

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