• Pictures to think about #2

    There I was last week standing in the Basilica of San Vitale in Ravenna, staring up (as you do) at the stunning mosaics high up on the walls. The pictures are astonishing and I may get round to posting some of them online later.

    My attention was distracted though by a small boy rushing backwards and forwards in front of the altar. Whilst everyone’s eyes were up towards the ceiling, he was staring intently down at the floor.

    image

    Backwards and forwards he went – to and fro. It took me a few moments to realise that there was a pattern to his movements. He alone in the place had realised that there was an old labyrinth laid into the floor right in front of the altar. He was following in the pathway right into the middle, at which point he ran off to find some other entertainment.

    It is a fairly small labyrinth – about 12 feet wide and made more for small feet than my own feet. (Labyrinths – Young Church, hmmm…)

    All the same, I started to walk it and soon found myself thinking about those whom I had brought with me on my travels in my mind. As a priest it is a kindness to your congregation to forget about most of them when you go away on holiday. Everyone needs time off and you can serve better when you get home if you have a rest for a while. All the same, some people linger in your mind and I found some of them with me as I travelled the circles in front of the altar. And those whom I think about from my own life too – the people I carry in my heart wherever I go, some of whom do the same for me and some of whom would be astonished to know they were being prayed for in a sixth century basilica in modern day Italy.

9 responses to “Biobank – an ethical question”

  1. Rev Ruth Avatar

    I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

  2. Raspberry Rabbit Avatar

    I haven’t been asked. Radical foreign clerics must not be on the list.

    I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

    RR

  3. Tim Avatar

    Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

    A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

  4. chris Avatar

    We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

  5. asphodeline Avatar
    asphodeline

    Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

  6. kelvin Avatar
    kelvin

    I have not seen Heroes. Is it about eugenics?

  7. asphodeline Avatar
    asphodeline

    Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

  8. kelvin Avatar
    kelvin

    Ah, I see why you associated it with me.

  9. Andrew Avatar
    Andrew

    My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

    I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

    What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

    The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

    If you get one of these invitation say no and tell them why — or better still rip it up.

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