• Overseas Links – some questions

    Lots of churches have overseas links. Individual churches, dioceses, even whole provinces of the Anglican Communion often have links to places far afield. They are sometimes successful, sometimes not. But they are often built on the curious last century notions that relationship depends upon physical contact and that travel is easier than communication.

    Of course, the world has changed.

    So what would international links between churches look like if we took as our starting point the modern world with all its potential and did not simply base our expectations on Victorian (colonial?) ideas of partnership?

    Firstly, I don’t think it is about doing it all online and never travelling. It is probably both/and rather than either/or. (Isn’t it always in our lovely postmodern world?)

    Secondly, I think we might expect relationships to be shorter in length rather than longer. What if we decided to twin our diocese to another for a short period – Lent, say. And what if we got the geeky ones to do it by arranging for skype video or google hangouts. How about a small group from one church meeting with a small group from another church on the other side of the world for a Lent study group rather than the dreary weariness that can characterise such groups if we keep doing them the same way with the people from round the corner every year? Or what if clergy from matched churches just got together once a week for an hour’s coffee and a chat – boiling the water thousands of miles apart but sitting down to chat through what their week was like, peer to peer, distance no object? Bible study, coaching, chat and gossip are all possible. They feed off one another anyway.

    Thirdly, I’ve been learning recently not to underestimate time differences when doing real-time stuff in the interconnected world we now live in. However, I’ve also been learning not to be defeated by it.

    Fourthly, would doing this kind of thing disenfranchise those who don’t do internet stuff? Oh yes, but then the need to travel to do linking work used to disenfranchise far more people who couldn’t, wouldn’t, shouldn’t travel or indeed, those who just couldn’t raise the money to go.

    Finally, it is worth asking the question whether this kind of linking would be better organised formally in a structured way or simply to just let it happen in a kind of free for all environment? (And is it either/or or both/and, once again).

9 responses to “Biobank – an ethical question”

  1. Rev Ruth Avatar

    I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

  2. Raspberry Rabbit Avatar

    I haven’t been asked. Radical foreign clerics must not be on the list.

    I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

    RR

  3. Tim Avatar

    Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

    A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

  4. chris Avatar

    We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

  5. asphodeline Avatar
    asphodeline

    Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

  6. kelvin Avatar
    kelvin

    I have not seen Heroes. Is it about eugenics?

  7. asphodeline Avatar
    asphodeline

    Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

  8. kelvin Avatar
    kelvin

    Ah, I see why you associated it with me.

  9. Andrew Avatar
    Andrew

    My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

    I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

    What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

    The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

    If you get one of these invitation say no and tell them why — or better still rip it up.

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