• Presumed Consent

    Last night the Welsh Assembly agreed a new policy of presumed consent with regard to organ donation. Now, instead of opting to become an organ donor, in Wales it will be presumed that a person is willing to donate their organs after death, unless they have opted out.

    I find this one an incredibly tough call, but I think that the Welsh Assembly is wrong. I’m opposed to presumed consent. I think it is wrong.

    And yet I’m in favour of organ donation. I am on the register of organ donors. I recently had to renew my driving license and happily ticked the box indicating that I would be happy to consent to my organs being used to give life to someone else after I die.

    My problem with presumed consent is that I have a problem with presumed anything. The dominant discourse in medical ethics hitherto has been around the the notion of informed consent. Presumed consent undermines this significantly. It also changes the relationship between the state and the individual in a way that makes me feel very uncomfortable.

    It seems to me that the gift of organs after one has died is one of the greatest gifts that can be made. This legislation takes away from that sense of giftedness.

    I’m opposed on pastoral grounds too. For many relatives the idea that they can consent to the donation of healthy organs from someone who is at the point of death is a wonderful and powerful thing. If the decision is no longer theirs then something has gone which has mattered to many.

    If I needed an organ donation then I’ve no doubt I would long for anything that made more organs available. However, if I ask myself whether I would want to receive an organ from someone without knowing whether or not they wanted that procedure to happen I find myself having to think long and hard. Would I want an organ from someone who’s relatives were opposed to the organ removal? Organ donation can currently help people’s grieving processes. It now has the potential to complicate grief immesurably for some.

    People often don’t know what it will feel like when someone dies. The ability to make decisions at that time is crucial. Removing the possibility of decision making concerns me greatly. Some urgently want whatever good that can come from a death to come to pass. However others don’t want a body to be touched more th an is necessary either. I’ve no doubt that some will see this as a violation and the way that they will cope with the death in those circumstances is entirely unknown to us but cannot be easy.

    We are not simply flesh that the state owns and from which it can harvest. Somehow I can’t get away from the idea that we are more than that and that our laws should recognise that.

    I’m not really aware of how the debate about this has gone in Wales. I’ve been paying attention to other moral discussions here recently. These are just my initial instictive reactions to news reports today.

    As I said at the outset, I don’t find that a comfortable position to come to or to articulate. However, uncomfortable decisions are precisely what life makes us make.

    What do you think?

8 responses to “What is a wiki?”

  1. Chris Avatar

    I wanted to comment on your wiki post, but there is a gremlin preventing me – no box to write in, so no writing!
    [Comment now moved]

    This is what I’d have said:
    Great clip! A really clear description – can we get it incorporated into an educational package for the church? See http://scotedublogs.wikispaces.com/ for a good example of a wiki in use for over a year.

  2. Tim Avatar

    Yeah. Wikis have huge potential. When I was setting up my church website I sat down and thought:
    a) lots of pages
    b) easy editing
    c) uniform appearance across pages
    d) ability to allow some people to (not) edit certain pages

    End result was dokuwiki.

    The real trouble is still persuading people that they’re capable of contributing…

  3. kelvin Avatar
    kelvin

    Yes, it is odd getting people to post on a wiki is very much harder than getting them to post a comment on a blog. Something about a fear of being the authorial voice.

    I think that it is fear of being contradicted and corrected, which is a shame, as whenever I post to a wiki, I’m hoping that someone can improve on what I’ve written.

  4. Kimberly Avatar

    Fabulous video. Thanks for linking it.

    I wonder if this is one of the ways we should be trying to respond to the Draft Anglican Covenant.

  5. Stewart Avatar

    Wikis are great – look forward to seeing the St Mary’s Wiki developing (and adding to it!)

  6. jimmux Avatar

    Thanks for a very clear explanation! Now that I understand how they work, I’ll be raising a discussion on how we might be able to use them on the National Postgraduate Committee of the United Kingdom. They seem a very useful tool for sub-committees which do a lot of work by e-mail.

  7. Kennedy Avatar
    Kennedy

    I had a look at Tim’s church website and looked at the bit with the contributions from the congregation and saw this statement:

    ‘Please note: the content in this section is contributed by members of the congregation and should not be considered official statements by the Church.’

    I am a great fan of wikis for collaborative work, but I think this indicates one of the issues with ‘public’ wikis. These problems tend not occur when wikis are being used for internal usage or for a closed group. Open editing is very attractive but you need some form of management to ensure that defacement doesn’t occur or statements which might be damaging are published.

    Also, how do I tell the difference between ‘the Church’ and ‘ members of the congregation’? Are they not the same thing?

    Kennedy

  8. […] First posted quite a while ago here. […]

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