• Presumed Consent

    Last night the Welsh Assembly agreed a new policy of presumed consent with regard to organ donation. Now, instead of opting to become an organ donor, in Wales it will be presumed that a person is willing to donate their organs after death, unless they have opted out.

    I find this one an incredibly tough call, but I think that the Welsh Assembly is wrong. I’m opposed to presumed consent. I think it is wrong.

    And yet I’m in favour of organ donation. I am on the register of organ donors. I recently had to renew my driving license and happily ticked the box indicating that I would be happy to consent to my organs being used to give life to someone else after I die.

    My problem with presumed consent is that I have a problem with presumed anything. The dominant discourse in medical ethics hitherto has been around the the notion of informed consent. Presumed consent undermines this significantly. It also changes the relationship between the state and the individual in a way that makes me feel very uncomfortable.

    It seems to me that the gift of organs after one has died is one of the greatest gifts that can be made. This legislation takes away from that sense of giftedness.

    I’m opposed on pastoral grounds too. For many relatives the idea that they can consent to the donation of healthy organs from someone who is at the point of death is a wonderful and powerful thing. If the decision is no longer theirs then something has gone which has mattered to many.

    If I needed an organ donation then I’ve no doubt I would long for anything that made more organs available. However, if I ask myself whether I would want to receive an organ from someone without knowing whether or not they wanted that procedure to happen I find myself having to think long and hard. Would I want an organ from someone who’s relatives were opposed to the organ removal? Organ donation can currently help people’s grieving processes. It now has the potential to complicate grief immesurably for some.

    People often don’t know what it will feel like when someone dies. The ability to make decisions at that time is crucial. Removing the possibility of decision making concerns me greatly. Some urgently want whatever good that can come from a death to come to pass. However others don’t want a body to be touched more th an is necessary either. I’ve no doubt that some will see this as a violation and the way that they will cope with the death in those circumstances is entirely unknown to us but cannot be easy.

    We are not simply flesh that the state owns and from which it can harvest. Somehow I can’t get away from the idea that we are more than that and that our laws should recognise that.

    I’m not really aware of how the debate about this has gone in Wales. I’ve been paying attention to other moral discussions here recently. These are just my initial instictive reactions to news reports today.

    As I said at the outset, I don’t find that a comfortable position to come to or to articulate. However, uncomfortable decisions are precisely what life makes us make.

    What do you think?

One response to “Reaching the Unconnected”

  1. David Kenvyn Avatar
    David Kenvyn

    The way the story has been presented in the press is somewhat misleading. What Glasgow Libraries are offering is not a new service. ICT equipment and training has been available in libraries throughout the UK, since the Blair government made the funding available in 1997.

    One of my first tasks in East Dunbartonshire was to write the successful bid for government funds from what was then known as the People’s Network. PCs, because that was the cutting edge technology at the time, were installed in libraries across the UK. Buddies were recruited for training programmes. People were taught, and can still be taught to use the appropriate technology in classes run through the various library services.

    Unfortunately, once the initial tranche of funding was exhausted, libraries were required to have their own sustainability programmes, but no funding was ring-fenced for this purpose.

    It is hardly surprising that there are differences in digital uptake between Dowanhill and Possilpark, or between Shawlands and Cardonald. Glasgow Libraries are now trying to deal with that digital difference, without any funding from the Scottish or UK Governments to do so. It is my view that they should be applauded for this initiative, which is an extension of the work that has been done over the last 18 years.

    You are quite right to say that this is a social justice issue. It is also vital to the success of the economy of the country. Perhaps we need to think about the creation of a new tranche of funding so that libraries can offer the cutting edge resources in ICT that people across Scotland need.

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