Every day, the straight heterosexist hegemony manages to find new ways to assert its dominance over all who do not share its presumptions.
Today, hangers on the back of an hotel room door.
Every day something different.
9 responses to “Biobank – an ethical question”
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I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.
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I haven’t been asked. Radical foreign clerics must not be on the list.
I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.
RR
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Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.
A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.
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We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.
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Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂
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I have not seen Heroes. Is it about eugenics?
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Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!
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Ah, I see why you associated it with me.
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My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.
I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.
What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.
The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.
If you get one of these invitation say no and tell them why — or better still rip it up.
Previous Posts
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Clergy Morale
Anne has posted about the all too palpable sense of low morale amongst the clergy which she notices at General Synod last week. She reports that she is working on a CMD handbook. I think that it might be worth trying to think about the things which contribute to lower morale. One thing which came…
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Pentecost
Fabulous morning at church. All one could hope for. It is very good to be back home. The bellringers were ringing because of the festival. A jazz trio was helping lead the worship. Babies were everywhere. We had an honoured friend – one of the Nigerian bishops visiting and blessing us. Very full church. Candles…
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End of Synod Coverage
The Primus thanks members of synod for this meeting, retiring conveners and ecumenical friends who have come to the synod. Thanks chairs and the Indaba design group. Thanks his assessor, Paul Romano. Kennedy and David Fraser for IT, me for twittering, Cursillo for doing the tea and coffee and the Church Officers here at Palmerston…
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Final Session – Budgets and Quota
There will be a phased reintroduction of Building Grants. 3% increase in quota is proposed and expectation is that deficit will be eliminated.
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