- Do you have a decent church website?
- Is it up to date?
- Is it responsive – ie does it work on mobile phones?
- Does your own online profile feature your ideas and hopes and dreams other than a desire for people to turn up to church?
- Do you know what you are doing with twitter and facebook?
- Who could you learn more about social media from?
- Do you have a compelling reason why people should come to your church other than where it is or what denomination it belongs to?
- Can everyone in the church tell you in one sentence what that compelling reason is?
- What is your beginners’ course like?
- What comes after the beginners’ course?
- Do people like the preaching?
- Do people enjoy the music?
- Have you dealt with conflicts from the past?
- Are the people friendly?
- Do you have any new groups starting soon?
- Do you talk about making the world a better place?
- How will people experience joy if they come to your congregation?
- If someone from your past turned up unexpectedly at worship how would it make you feel?
- How do you identify newcomers and what do you offer them?
- What problems will arise if you do grow and how will you deal with them?
- Do claims that you welcome everyone stop you working at welcoming those who traditionally find it hard to find a home in church?
- Do you use language that is inclusive of everyone?
- How do you know?
- Is there any identifiable group of people that you can’t explicitly say are welcome because of how an individual or group in the congregation will react?
- Do you want to grow or not?
9 responses to “Biobank – an ethical question”
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I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.
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I haven’t been asked. Radical foreign clerics must not be on the list.
I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.
RR
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Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.
A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.
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We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.
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Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂
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I have not seen Heroes. Is it about eugenics?
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Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!
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Ah, I see why you associated it with me.
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My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.
I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.
What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.
The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.
If you get one of these invitation say no and tell them why — or better still rip it up.
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