• On turning down Big Brother

    This morning could have been so very different. I could have been waking in a room of sleeping pseudo-clebs and instead of writing a blog post I could have been called to the diary room.

    The funniest telephone call I’ve taken in the last year was from an agent looking for candidates for the Big Brother House who was ringing to ask whether I would be interested in auditioning for Celebrity Big Brother. I didn’t stop laughing for days. It didn’t need a moment’s thought to know that the BB House was not the place for me.

    I have to say that my first thought was that I wasn’t a celebrity but then looking down the list of those who have actually made it into the house, I’m not sure that should have been a worry.

    I was never entirely sure why I got that call. The only thing I can think of is that they were going down the Pink List that the Independent kindly publish every year and asking everyone on it whether they might be interested. (The fact that they got to me would indicate that rather a lot of people turned them down before I got the chance to say no). Maybe this blog was a plus point in their minds too.

    But how our lives have changed over the years that Big Brother has been in existence on our television screens. The blurring of the public and the private is one of the major themes of modern Western life and one that I think we still don’t quite understand. And the profusion of cameras in our lives is something that I didn’t see coming. I have a little one on top of my computer screen waiting for any moment when I want to make a video call or for when online evening prayer starts up again. As I walk to work, I’ve no idea how many cameras will record my movements nor who will look at the images.

    And the idea of confessional diaries that all the world can read – well, blogging has become unremarkable now.

    My hunch is that many of the people who started blogs have fallen by the wayside. Perhaps they’ve got bored, perhaps they have been bitten on the behind as things they have written have come back to haunt them and perhaps they just didn’t get the celebrity that they were hoping for. How painful to be a celebrity in your heart that no-one pays any attention to at all.

    There’s still mileage in blogging but it is changing. We are seeing fewer bloggers stick it out but I think many of those who are keeping going for the long-term are learning how to do it successfully. The increasing ubiquity of social media means that it is hard to be a successful blogger without knowing one’s way around some of those platforms too.

    But people still read blogs. The thousands of people who read my post last week about the offense caused to many by the Director of Communications of the Church of England in one little tweet, were clearly interested in a perspective that they wouldn’t find in the mainstream media.

    Very happy to have turned down Big Brother. Very happy to still be on here.

9 responses to “Biobank – an ethical question”

  1. Rev Ruth Avatar

    I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

  2. Raspberry Rabbit Avatar

    I haven’t been asked. Radical foreign clerics must not be on the list.

    I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

    RR

  3. Tim Avatar

    Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

    A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

  4. chris Avatar

    We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

  5. asphodeline Avatar
    asphodeline

    Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

  6. kelvin Avatar
    kelvin

    I have not seen Heroes. Is it about eugenics?

  7. asphodeline Avatar
    asphodeline

    Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

  8. kelvin Avatar
    kelvin

    Ah, I see why you associated it with me.

  9. Andrew Avatar
    Andrew

    My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

    I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

    What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

    The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

    If you get one of these invitation say no and tell them why — or better still rip it up.

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