• Lord Carey is wrong (and not for the first time)

    The ability of Lord Carey to dominate the headlines during the synod of the Church of England is something that is a wonder of modern ecclesiastical communications. If I were working in the communications machine of the C of E, I’d despair of the former archbishop’s ability to step into the limelight just when one would be trying to get some kind of coherent message across.

    Lord Carey makes me feel sympathy for the Church of England, its synod and its communication team. Such is his impact. He is not to be underestimated.

    So, what are we to make of his statement that he is now in favour of Assisted Suicide, having been against it previously?

    I’ve not written much about this topic. It is a sensitive one and one which divides people in unpredictable ways. Working in the church, you kind of get used to the way we divide on many issues. (Those who are most antagonistic to women clergy are often the most antagonistic to gay men living lives of openness etc). However in this case, I think that we divide differently and unpredictably.

    I’m not persuaded by Lord Carey’s argument and don’t favour any change to the law.

    I’m familiar with the argument that we must do all we can to eliminate suffering and that sometimes life has just become intolerable. I have every sympathy with those who have seen someone die in pain and distress and would do anything to have made it easier. Of course I would.

    But I am also aware that people don’t die in a neat predictable way. Nor do they die isolated from the values and needs of those who are left behind. The relationship between those whose life is coming to an end is inevitably bound up with the lives of those who seek to care for them and those who perhaps should care for them but who don’t find themselves able to do so.

    Offering the choice to die inevitably puts new burdens on those who are dying as well as on those who are around them. I’m unpersuaded at this time that it is in the best interests of society as a whole for the moral right of one individual within that complex of relationships to automatically trump every other consideration.

    Now that’s a hard position for me to take because of two things. Firstly, I believe that we should seek to relieve suffering and act to reduce pain. I don’t believe that there is anything good about pain and unlike many religious people I think that it has no redemptive quality at all. Secondly because I think we need to give as much autonomy to the individual as we can.

    How can I come to the view that I do then that Lord Carey is wrong?

    Well, it isn’t just the dying person who suffers pain at the time of a death.  Nor is all pain caused by purely physical causes. I’m simply unpersuaded on pragmatic grounds that allowing Assisted Suicide will lead to an overall reduction in pain to humanity. Secondly, I don’t believe that a patient has absolute autonomy if there is an economic or emotional factor in their dying that can benefit others. When people die these things are all around.

    My objection to Assisted Suicide is not a particularly religious one. At least I don’t think so.

    The only religious reason that I can think of which supports my position is that I think it is incumbent on the Christian to care for the vulnerable. The dying are incredibly vulnerable. They are vulnerable to those who would like them to get on with it. Those can be relatives but equally they can be doctors and health service managers too.

    I can’t see any protections that could remove that vulnerability.

    The reality is, not everyone dies in a middle class way with articulate, caring people around them who stand to gain nothing from their death.

    For these practical, emotional and probably inconsistent reasons, I can’t support a change in the law.

    Though I know many good people who will agree with him, I have to admit that, not for the first time, I think Lord Carey is wrong.

9 responses to “Biobank – an ethical question”

  1. Rev Ruth Avatar

    I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

  2. Raspberry Rabbit Avatar

    I haven’t been asked. Radical foreign clerics must not be on the list.

    I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

    RR

  3. Tim Avatar

    Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

    A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

  4. chris Avatar

    We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

  5. asphodeline Avatar
    asphodeline

    Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

  6. kelvin Avatar
    kelvin

    I have not seen Heroes. Is it about eugenics?

  7. asphodeline Avatar
    asphodeline

    Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

  8. kelvin Avatar
    kelvin

    Ah, I see why you associated it with me.

  9. Andrew Avatar
    Andrew

    My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

    I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

    What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

    The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

    If you get one of these invitation say no and tell them why — or better still rip it up.

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