Today is the Feast of the Nativity of St John the Baptist. (We only celebrate three birthdays in the church calendar – John the B, his cousin Jesus and Mary, Mother of Our Lord and Aunty of John the B).
I’ve been on retreat for the last week – something I last did 2 years ago. It has been very good too, looking at wounded healers – Henri Nouwen, Brother Roger, Mychal Judge and John O’Donohoe.
The town that I’ve been staying in goes rather large on celebrating the Eve of the Feast of St John, so we got a firework display just before midnight, a big fire by the sea and the local population all turning up to dip their feet into the water at midnight.
Anyway, here are a few firework photographs. It was a great retreat week and this was a rather spectacular conclusion.
9 responses to “Biobank – an ethical question”
-
I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.
-
I haven’t been asked. Radical foreign clerics must not be on the list.
I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.
RR
-
Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.
A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.
-
We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.
-
Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂
-
I have not seen Heroes. Is it about eugenics?
-
Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!
-
Ah, I see why you associated it with me.
-
My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.
I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.
What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.
The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.
If you get one of these invitation say no and tell them why — or better still rip it up.
Previous Posts
-
Messiaen's Birthday
Off to the chapel of Glasgow University last night for a concert to celebrate what would have been Messiaen’s 100 birthday. The first half was organ only. Firstly the eternal church shimmered into view and the disappeared again in Apparition de l’Eglise Eternelle. Then it was off to Bethelehem for the Christmas cycle La Nativité…
-
Oliver Postgate – RIP
Hard to think of anyone who has brought as much innocent pleasure to my generation. [youtube:http://uk.youtube.com/watch?v=_l2AblgHy1w]
-
Apple Tree
Last night’s Choral Evensong began with one of my favourites; a piece which gets sung quite a lot at this time of year and which is high on the list of Music Which Makes Me Cry. It was Elizabeth Poston’s carol Jesus Christ the Apple Tree. It is the weirdest thing. Most of the time…
-
I seem to have been spared
It would appear that I am spared. The virus that laid me low last week has not beaten me. There seems to have been a lot of people who have been sick with various bugs over the last few weeks. It is good to be feeling better. I’ve been picking up work fairly gently over…



Leave a Reply