• Read thurible.net by email

    One of the surprises for me in keeping the blog over the last year or so has been how many people have taken up the opportunity to read thurible.net by email.

    I’d kind of thought that email was old fashioned technology and in many ways it is. But lots of people use old fashioned tech all the time. Just look at the number of people gazing with love at the vinyl records in any charity shop.

    The people who have megablogs tend to be quite keen on keeping a mailing list. Those who are making serious money from blogging always say that you need to grow your mailing list and then sell things to people in order to make your dough.

    Even though I’m not in the business of making megabucks from the blog, I took the trouble of inviting people to subscribe to receive posts by email quite a while ago. There are now somewhere between 300 and 350 people who receive the blog by email. In the grand scheme of things, that’s not huge. Very many bloggers have huge lists. However, it is far more than I had guessed would be interested. To put it into perspective, that’s higher than the number of people who come to St Mary’s on most Sundays.

    There was a trend some years ago to depart from pulpits and preach sermons wandering amongst the people. I tend to think that preachers should see pulpits everywhere.

    Anyway, here’s a shoutout to those who receive by email. Thanks for taking the trouble.

    Anyone wanting to join them can do so right here and right now.

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9 responses to “Biobank – an ethical question”

  1. Rev Ruth Avatar

    I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

  2. Raspberry Rabbit Avatar

    I haven’t been asked. Radical foreign clerics must not be on the list.

    I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

    RR

  3. Tim Avatar

    Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

    A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

  4. chris Avatar

    We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

  5. asphodeline Avatar
    asphodeline

    Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

  6. kelvin Avatar
    kelvin

    I have not seen Heroes. Is it about eugenics?

  7. asphodeline Avatar
    asphodeline

    Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

  8. kelvin Avatar
    kelvin

    Ah, I see why you associated it with me.

  9. Andrew Avatar
    Andrew

    My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

    I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

    What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

    The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

    If you get one of these invitation say no and tell them why — or better still rip it up.

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