• On not giving up social media

    Like Mother Ruth, I was pondering yesterday a number of people who have decided to give up social media for Lent. It strikes me as a very odd thing to do.

    On the one hand, I suppose I can see that sometimes religious people feel the need to withdraw from the world for a time and simply be in a different place with less distraction. That is the essence of going on retreat. However, I can only conclude that those who are giving up social media for Lent use it for different reasons than I do. For me, Facebook and Twitter and blogging (and email, come to that, for email is social media) are ways of connecting and communicating with others. On Facebook I hear about things I want to hear about – other people’s passions, other people’s loves, other people’s lives. But they are not simply the Other, out there. Those people are part of my life too. Social media adds layers to life that I think are good, not bad and that makes me puzzled by people wanting to give that up.

    I could understand someone saying that they are going to give up being bad-tempered on twitter or give up posting photographs of other people’s kittens on Facebook. Both of those seem commendable. Giving up social media entirely seems like giving up speech for 40 days in order to conquer bad temper – a strategy that one suspects might well backfire.

    Here’s a few things that were part of my day on social media yesterday:

    • Being fascinated by the reports of people in the USA that I know going out into the streets with their ash yesterday to offer “Ashes To Go” to anyone.
    • Learning with delight, on the sly, that the choir had been talking about the subject of my Ash Wednesday sermonette (“How would you live today if tomorrow was your last?”) whilst in the pub after the Ash Wednesday service, where presumably they had gone for a sip of water.
    • Making a connection with the Dean of another cathedral that I’ve not been in touch with for four or five years.
    • Sharing a joke with a couple of people scattered in parts of the Scottish Episcopal Church that I think are remote (and which they probably think are Pisky Central).
    • Sharing a few pictures of beautiful things I’ve spotted over the last couple of days.
    • Making contact with a member of St Mary’s of a few years ago who was saying she missed Lent here and asking her what it was she missed – her answer, “Beauty from Chaos”.

    Why would I want to deprive myself of any of those things? What spiritual discipline says that to miss out on any of that that is good?

    My life is richer for social media. It is also diminished by those who step away from it, (yes, from me) for Lent.

    I’m puzzled by this devotion and believe it, not social media, to be a temptation.

9 responses to “Biobank – an ethical question”

  1. Rev Ruth Avatar

    I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

  2. Raspberry Rabbit Avatar

    I haven’t been asked. Radical foreign clerics must not be on the list.

    I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

    RR

  3. Tim Avatar

    Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

    A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

  4. chris Avatar

    We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

  5. asphodeline Avatar
    asphodeline

    Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

  6. kelvin Avatar
    kelvin

    I have not seen Heroes. Is it about eugenics?

  7. asphodeline Avatar
    asphodeline

    Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

  8. kelvin Avatar
    kelvin

    Ah, I see why you associated it with me.

  9. Andrew Avatar
    Andrew

    My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

    I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

    What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

    The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

    If you get one of these invitation say no and tell them why — or better still rip it up.

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