What is in Kelvin's Head?

The Organ & The Consultation

02/12/2013

This picture appeared on my facebook feed yesterday. It was posted by Peter Wakeford who was playing the organ yesterday morning. It shows what was going on during the service.

Now, if you had been there yesterday you would have heard some sumptuous music and would have had no idea that anything was going wrong. However, the last thing an organist wants is for the pistons to fly out when you give them a nudge.

This picture shows something fairly small going wrong with the organ but it is indicative of the state that parts of it are in. Much of the pipework – the bits that make the noise is fine. Indeed, much of the pipework is of significant historical interest. However, the bits that make the pipes play, not so much. There are huge problems with the console and with the transmission – that’s the gubbins that tells which pipe to open after the organist has pulled out a stop and attempted to play a note.

Thinking about the organ is just one bit of what the Vestry are currently consulting the congregation about. A new consultation paper called Releasing the Mission was launched last week at the Annual General Meeting. It is partly about the organ but is also about how we build capacity into St Mary’s so that we can do what we do well and even do more. We are so busy at the moment that the building is creaking at the seams. If we did a bit of development work, we would be able to help to secure the musical life of the place (which is a core part of our mission work), provide more space for the groups and networks that are buzzing, get better use of the building for the local community and also provide a more welcoming space when the diocese is holding big events at St Mary’s.

The consultation paper is available online on the website and the Vestry are hoping that lots of people will respond – whether people who are directly members of the congregation or indeed those who have a more tangential relationship with St Mary’s. The hope is that lots of different voices and constituencies can be heard. Responses can be made using the on-line form or in writing via the Cathedral office.

9 responses to “Biobank – an ethical question”

Rev Ruth

25/10/2007

I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

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Raspberry Rabbit

25/10/2007

I haven’t been asked. Radical foreign clerics must not be on the list.

I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

RR

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Tim

25/10/2007

Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

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chris

25/10/2007

We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

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asphodeline

25/10/2007

Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

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kelvin

25/10/2007

I have not seen Heroes. Is it about eugenics?

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asphodeline

26/10/2007

Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

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kelvin

26/10/2007

Ah, I see why you associated it with me.

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Andrew

19/03/2008

My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

If you get one of these invitation say no and tell them why — or better still rip it up.

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