• Thanksgivingukkah

    Double blessings today. Blessings upon American friends celebrating Thanksgiving and blessings too on Jewish friends celebrating Hanukkah. It is very unusual for the two holidays to coincide. The last time was in 1888. The next time will be in 70000 years. (I know, that does seem incredible but calendars are calendars).

    I was in the States last year for Thanksgiving. It is a slightly odd festival to observe as a single non-American to whom the feast has little meaning. For me it meant thinking very carefully about how I was travelling at that time as so many Americans try to fly around the country that airports are very busy, often at a time when weather is tricky. In the end I settled on spending Thanksgiving on an island in Florida and hired a bike to explore a wildlife park for alligators and other extraordinary things and sat on the beach looking at snowy egrets and pelicans.

    The thing that really surprised me was going to church on Thanksgiving morning and discovering that it was a harvest festival. Somehow I hadn’t made the connection at all.

    As for Hanukkah, we had readings from the first book of the Maccabees last week at Daily Prayer in the Scottish Episcopal Church. So the swashbuckling exploits of Judas Maccabeus are fairly fresh in my mind. We only get anything from Maccabees once in the two year cycle of the readings at Daily Prayer. Always make me realise that there is so much from Jewish history that I don’t know that much about.

    Anyway, to everyone celebrating today, many blessings.

    And yes, it really is 70000 years until these two festivals will co-incide again.

9 responses to “Biobank – an ethical question”

  1. Rev Ruth Avatar

    I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

  2. Raspberry Rabbit Avatar

    I haven’t been asked. Radical foreign clerics must not be on the list.

    I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

    RR

  3. Tim Avatar

    Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

    A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

  4. chris Avatar

    We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

  5. asphodeline Avatar
    asphodeline

    Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

  6. kelvin Avatar
    kelvin

    I have not seen Heroes. Is it about eugenics?

  7. asphodeline Avatar
    asphodeline

    Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

  8. kelvin Avatar
    kelvin

    Ah, I see why you associated it with me.

  9. Andrew Avatar
    Andrew

    My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

    I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

    What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

    The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

    If you get one of these invitation say no and tell them why — or better still rip it up.

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