• 10 Things Gay People Still Need

    Once the law changes and we have access to marriage, is that it? Will equality have been achieved? Will we suddenly have become full citizens? Will the job be done?

    Here’s my run down of what we still need.

    • We need it to be impossible for the authorities to accept a plea less than murder in a suspected homophobic killing where the defendants admit killing the deceased with a hammer in his own home. http://www.bbc.co.uk/news/uk-northern-ireland-24122514. I guess that means a review of hate crime legislation at least in Northern Ireland.
    • We need to be safe when we travel – that means building on the good work that this country has done in terms of foreign policy, but a review here wouldn’t do any harm either. Oh, and trade deals do need to be linked to human rights. (Yes, LGBT rights are human rights, where have you been?)
    • We need to keep working for marriage equality. We’re getting a step towards it – a massive step towards it, but it ain’t equality and equality is what we are after, right? Interesting question for the various gay rights organisations this – will they still work towards equal marriage once this legislation has gone though. They know this is a pragmatic compromise – will they keep up the fight? – and no, I’m not talking about mixed-sex civil partnerships.
    • We need an urgent comprehensive review of all religious exemptions from legislation.
    • We need better age appropriate sex education in schools.
    • We need access to education free from prejudice.
    • We need further work done by companies and institutions on supporting gay folk at work especially in order to develop access to leadership positions where LGBT people have not found these easy to access.
    • We need appropriate representation in the media.
    • We need the Archbishop of Canterbury to commit to supporting his senior gay clergy and work to undermine the systems which keep so many of them in lacy but impeccable closets.
    • We need Hollywood to understand that we don’t all end up dead or heartbroken – Brokeback Mountain, I’m talking about you.

    Have I missed anything?

9 responses to “Biobank – an ethical question”

  1. Rev Ruth Avatar

    I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

  2. Raspberry Rabbit Avatar

    I haven’t been asked. Radical foreign clerics must not be on the list.

    I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

    RR

  3. Tim Avatar

    Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

    A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

  4. chris Avatar

    We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

  5. asphodeline Avatar
    asphodeline

    Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

  6. kelvin Avatar
    kelvin

    I have not seen Heroes. Is it about eugenics?

  7. asphodeline Avatar
    asphodeline

    Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

  8. kelvin Avatar
    kelvin

    Ah, I see why you associated it with me.

  9. Andrew Avatar
    Andrew

    My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

    I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

    What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

    The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

    If you get one of these invitation say no and tell them why — or better still rip it up.

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