• What am I listening to?

    Oh, thank you for asking.

    Well, the days of listening to CDs seem to be long over, don’t they? I’ve not ditched all the CDs like Chris Pinnock has, but wonder how long I’ll go on with a cupboard full of little boxes.

    • Firstly and most splendidly there’s the Gyndebourne summer online opera festival. Oh yes, you can watch and listen to half a dozen or so glorious Glyndebourne productions. Like all opera should be, they are free at the point of delivery.
    • I briefly got sucked into the gay-country-pap of Steve Grand’s All American Boy the other day until I realised it was just like most representations of gay people in America – doomed to end in tears. (Cheyenne Jackson’s Don’t Wanna Know made me laugh, but it is more of the same – all American gay boys don’t get happy endings to their stories much in America).
    • Then something I saw somewhere reminded me of Alan Price’s O Lucky Man so I had a good listen to that.
    • I also came across Tom Gilfellon’s album In the Middle of the Tune on Spotify – something I’ve not heard since I ditched vinyl – here’s the first track The Banks of Red Roses.
    • Whilst I was getting stuff ready for Pride the other week, I needed some music to cheer me on my way so listened to Holly Near and sang along with Singing for our Lives.
    • Christy Moore’s Before the Deluge doesn’t get tired, does it?
    • Neither does Martin Simpson’s Prodigal Son album.
    • And did you know you can hear Frank Weir’s monumental 20th Century Folk Mass on spotify?  It is really a big band mass, but there you do.

    Spotify tried to get me to listen to Val Doonican the other day. I’m not letting on as to whether I did or not though.

     

9 responses to “Biobank – an ethical question”

  1. Rev Ruth Avatar

    I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

  2. Raspberry Rabbit Avatar

    I haven’t been asked. Radical foreign clerics must not be on the list.

    I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

    RR

  3. Tim Avatar

    Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

    A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

  4. chris Avatar

    We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

  5. asphodeline Avatar
    asphodeline

    Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

  6. kelvin Avatar
    kelvin

    I have not seen Heroes. Is it about eugenics?

  7. asphodeline Avatar
    asphodeline

    Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

  8. kelvin Avatar
    kelvin

    Ah, I see why you associated it with me.

  9. Andrew Avatar
    Andrew

    My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

    I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

    What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

    The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

    If you get one of these invitation say no and tell them why — or better still rip it up.

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