• St Andrews Debates

    Great night last night in Lower Parliament Hall in St Andrews. I’d been invited to join a panel debate (a bit like Question Time) on LGBT issues at the invitation of the Debating Society and the LGBT Society of St Andrews University.

    I like going back to St Andrews, which was where I read theology from 1989 – 1992. I don’t get there terribly often.

    There are people who go to university there who never leave. They hang around and can’t get it out of their system. I was never like that but it is still lovely to return. There is still an emotional thrill to be had peeking into St Mary’s Quad and thinking, “I was here, I was here”

    So many things about St Andrews never change. However some things do. It was obvious last night that things have changed for gay students. In my time, the LGBT group met behind closed doors in a small room in the Chaplaincy on a Sunday evening. I never went. I would have been frightened to go but do remember walking past the steamed up windows and wondering what was going on inside. (They were probably boiling kettles to make tea, but the steamed up windows did make you wonder).

    Now, the LGBT Society is a sub committee of the Union, like the Debating Society. That means that by definition, every student in the University is a member and they are responsible for providing a range of services. They say there are a couple of hundred active members and last night, LGBT and Debates were holding their first joint event. It is almost inconceivable to me that the Debating Soc, which was so macho, testosterone fueled and deeply conservative in my day should be doing this now.

    It is quite moving to go back to your alma mater. Last night wasn’t just nostalgia for me though. I could see the real, material changes that have come to students like me. Things have changed, gloriously changed in the last 20 years. I’m proud to have been part of that and proud to have joined a great bunch of students last night for debate and socialising afterwards. (Though I gave up and headed to bed before they did).

9 responses to “Biobank – an ethical question”

  1. Rev Ruth Avatar

    I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

  2. Raspberry Rabbit Avatar

    I haven’t been asked. Radical foreign clerics must not be on the list.

    I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

    RR

  3. Tim Avatar

    Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

    A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

  4. chris Avatar

    We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

  5. asphodeline Avatar
    asphodeline

    Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

  6. kelvin Avatar
    kelvin

    I have not seen Heroes. Is it about eugenics?

  7. asphodeline Avatar
    asphodeline

    Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

  8. kelvin Avatar
    kelvin

    Ah, I see why you associated it with me.

  9. Andrew Avatar
    Andrew

    My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

    I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

    What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

    The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

    If you get one of these invitation say no and tell them why — or better still rip it up.

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