What is in Kelvin's Head?

Guest Post: Beth Routledge on the Grosvenor Essay on Marriage and Human Intimacy

10/09/2012

During this blessed time of sabbatical, I’m going to let other people do some of the talking on this blog. I’ve not done any guest posts before but it seems right now. The first of these is this piece from Beth Routledge who is a doctor working in the NHS and an altar server at St Mary’s. Beth blogs brilliant things at The Road Less Travelled

This week, the Grosvenor Essay on Marriage and Human Intimacy was published online [having been presented at General Synod in June]. This is a euphemistic title for a report into how the Doctrine Committee of the Scottish Episcopal Church feels about same-sex relationships. If you follow me on Twitter, you will be unsurprised to know that I was one of the alleged Twitterati who read it on Tuesday and ended up live commentating on all of the many ways in which it managed to offend me.

In my opinion, it is poorly written, badly referenced, and riddled with factual errors, and on that basis, irrespective of what it actually said, I find it difficult to understand how the SEC allowed it to be freely released to the public. (more…)

9 responses to “Biobank – an ethical question”

Rev Ruth

25/10/2007

I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

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Raspberry Rabbit

25/10/2007

I haven’t been asked. Radical foreign clerics must not be on the list.

I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

RR

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Tim

25/10/2007

Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

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chris

25/10/2007

We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

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asphodeline

25/10/2007

Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

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kelvin

25/10/2007

I have not seen Heroes. Is it about eugenics?

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asphodeline

26/10/2007

Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

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kelvin

26/10/2007

Ah, I see why you associated it with me.

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Andrew

19/03/2008

My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

If you get one of these invitation say no and tell them why — or better still rip it up.

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