• Online reading

    Here’s some on-line reading.

    The Doctrine Committee of the Scottish Episcopal Church published an essay earlier this year on Marriage and Human Intimacy. This is available now online for the first time along with the other previous essays which they have written.

    There was a mini-brouhaha on twitter when one or two people actually read it this afternoon and started to recount the ways in which it is offensive. The bit about scientific evidence for gay people reacting to sweat differently to straight people seems to be the bit that has caused most offence. Silliest is perhaps: “Gay men tend to weigh less than heterosexual men and
    to have shorter limbs and hands.”

    By far the most offensive thing about it from my point of view is that on being asked at General Synod whether any gay people had been engaged, consulted or included in the process, the convener of the group answered in the negative.

    Do I need to spell it out? If we were doing a piece of work about women but all the writers were men…..if we were doing something about disability and no-one bothered to speak to anyone in a wheelchair…..

    Etc.

    There will be plenty more to say about this later, but for now read it. It is designed to provoke debate and is an invitation to respond.

    The essay is available here.

    Rather more positively we have a good article in the White Rose, the magazine of Old St Paul’s church in Edinburgh.

    Towards the end of a long article, well worth reading, Ian Paton, their Rector says:

    As far as I can see, therefore, there is no obvious reason why such Godgiven humanity should not be affirmed in same-sex relationships as well as in heterosexual ones. No relationships are perfect, whatever the sexual orientation of the persons involved, but they all contain the potential to reveal that God-given humanity.

    Despite the prejudices and ignorance of many people, which I have shared on the past, gay and lesbian people themselves have developed ways of finding, establishing and celebrating life-long relationships of mutual commitment and joy. For myself, I
    can see no reason, in the Bible or in Tradition, for preventing those relationships from being equally
    acknowledged and affirmed, with those of heterosexual couples, as marriages blessed by God, signs and sacraments of God’s committed and joyful love for the world.

    When he is not busy being the Rector of Old St Paul’s, Fr Ian also happens to convene the Liturgy Committee in our church.

    You can find that here.

9 responses to “Biobank – an ethical question”

  1. Rev Ruth Avatar

    I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

  2. Raspberry Rabbit Avatar

    I haven’t been asked. Radical foreign clerics must not be on the list.

    I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

    RR

  3. Tim Avatar

    Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

    A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

  4. chris Avatar

    We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

  5. asphodeline Avatar
    asphodeline

    Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

  6. kelvin Avatar
    kelvin

    I have not seen Heroes. Is it about eugenics?

  7. asphodeline Avatar
    asphodeline

    Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

  8. kelvin Avatar
    kelvin

    Ah, I see why you associated it with me.

  9. Andrew Avatar
    Andrew

    My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

    I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

    What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

    The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

    If you get one of these invitation say no and tell them why — or better still rip it up.

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