• Presumed Consent

    Last night the Welsh Assembly agreed a new policy of presumed consent with regard to organ donation. Now, instead of opting to become an organ donor, in Wales it will be presumed that a person is willing to donate their organs after death, unless they have opted out.

    I find this one an incredibly tough call, but I think that the Welsh Assembly is wrong. I’m opposed to presumed consent. I think it is wrong.

    And yet I’m in favour of organ donation. I am on the register of organ donors. I recently had to renew my driving license and happily ticked the box indicating that I would be happy to consent to my organs being used to give life to someone else after I die.

    My problem with presumed consent is that I have a problem with presumed anything. The dominant discourse in medical ethics hitherto has been around the the notion of informed consent. Presumed consent undermines this significantly. It also changes the relationship between the state and the individual in a way that makes me feel very uncomfortable.

    It seems to me that the gift of organs after one has died is one of the greatest gifts that can be made. This legislation takes away from that sense of giftedness.

    I’m opposed on pastoral grounds too. For many relatives the idea that they can consent to the donation of healthy organs from someone who is at the point of death is a wonderful and powerful thing. If the decision is no longer theirs then something has gone which has mattered to many.

    If I needed an organ donation then I’ve no doubt I would long for anything that made more organs available. However, if I ask myself whether I would want to receive an organ from someone without knowing whether or not they wanted that procedure to happen I find myself having to think long and hard. Would I want an organ from someone who’s relatives were opposed to the organ removal? Organ donation can currently help people’s grieving processes. It now has the potential to complicate grief immesurably for some.

    People often don’t know what it will feel like when someone dies. The ability to make decisions at that time is crucial. Removing the possibility of decision making concerns me greatly. Some urgently want whatever good that can come from a death to come to pass. However others don’t want a body to be touched more th an is necessary either. I’ve no doubt that some will see this as a violation and the way that they will cope with the death in those circumstances is entirely unknown to us but cannot be easy.

    We are not simply flesh that the state owns and from which it can harvest. Somehow I can’t get away from the idea that we are more than that and that our laws should recognise that.

    I’m not really aware of how the debate about this has gone in Wales. I’ve been paying attention to other moral discussions here recently. These are just my initial instictive reactions to news reports today.

    As I said at the outset, I don’t find that a comfortable position to come to or to articulate. However, uncomfortable decisions are precisely what life makes us make.

    What do you think?

7 responses to “Reclaiming the web”

  1. Paul Hutchinson Avatar
    Paul Hutchinson

    Thank you for making me think in a different direction just before pausing for lunch. I have never had a blog, so came quite late to Internet social discourse, and have engaged more since joining one major network in 2010 and another in early 2014 – normally using those networks rather than a comment box such as this. Not all of us are natural creators of substantial original content, but like to be thoughtful in brief exchange, and so both those major networks, though cursed with many difficulties, serve those brief exchanges quite well. I do agree that the endless recycling of links (on both of them) can be wearying, and I do wish that some old friends would be a little more self-critical. But the price of any kind of social discourse is that one is vulnerable to the otherness of the other.
    I feel I ought to be writing a more substantial comment here, but hope that this is enough. The time is not always there to offer deeper reflection: but sometimes a blogger needs to hear at least a small splash from the stone thrown down the well!

    1. Kelvin Avatar

      Thanks for the comment, Paul. I’m aware that not everyone is a content creator, but perhaps what I miss is the sense of discovering different communities online and keeping the comments more or less in one place helps with that.

      The glory days of 50 or more comments on a post are probably over. I suspect I mourn the sense of community being created even more than I miss the interesting reflections of others. Retweets and shares are always welcome – but they are the means of amplification. Becoming loud isn’t the same as becoming wise, nor the same as becoming connected.

  2. Seph Avatar
    Seph

    It’s a damnable shame—and mostly the fault of Facebook. Twitter at least has an etiquette of sorts, wherein it is considered impolite not to respond to the original tweet, which is usually made by the blogger in question.

    Facebook, in short, is the scourge of the Internet. I have often been in groups which have decided to do all of their organizing on Facebook, despite my protests that I’m not on Facebook and don’t want to be, and really an e-mail list would be just as easy, and would they like me to set one up. This inevitably leads to my marginalization within the group, as no-one bothers to keep me abreast of the discussions to which I am not party.

    Can you tell I’m upset about this?

  3. Daniel Lamont Avatar
    Daniel Lamont

    I am only an occasional user of Facebook but I know what you mean, Kelvin. And indeed, I never read the comments ‘below the line’ on newspapers like ‘The Guardian’. You offer some useful advice. I read yours and one or two other blogs on a regular basis but don’t always comment. However, I can see that the author of a blog would like some feedback. I would be sad not to have the blogs that I do read because they do give me a sense of what people are thinking and an odd sense of community.

  4. Father Ron Smith Avatar
    Father Ron Smith

    My own contribution to the blogopshere is, I’m afraid, Father Kelvin, limited to comments I make on other people’s blogs (such as ‘Thinking Anglicans’ and ‘Anglican Down Under’ – a local NZ forum; plus my own blog ‘kiwianglo’, where i pluck articles that interest me personally from the web and provide my own commentary. This still interests me, personally, and provides my few readers with information they might not otherwise be bothered to glean for themselves. Like you, I am no longer an avid Facebook fan.

  5. David Campbell Avatar

    Hi Kelvin – thoughtful as ever – and yours is invariably the first blog I turn to each day. That you bring pressing issues to a wider audience and to people who know, or used to know, the church you serve is a great thing. I’m still blogging relatively strongly, but it’s certainly a different blogging experience when work is set in a very different context and especially community from previously, writing these days mainly for myself about things that interest me, although not quite at the address you have in your Blog Roll. http://www.limpingtowardsthesunrise.com is where it’s “all” happening.

    1. Kelvin Avatar

      Thanks David – nice to hear from you. I’ve amended the link.

      I don’t think many people use blogrolls to find blogs these days but whenever I remove it my mother complains…

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