• Somewhere over the rainbow

    rainbow

    I’ve just heard that I’ve been included in the Independent on Sunday’s Rainbow List. This is the new name for the Pink List – a list of gay, lesbian, bi and trans people whom the newspaper wants to celebrate as people who have made a difference in the past year.

    To be honest I’m surprised to be included again – I’ve been on the Pink List for the last few years and was really expecting to be nudged out of the way this year. But there I am and they’ve very kindly bumped me up over fifty places to number 34 and I’m in company that takes my breath away.

    It is great to see Vicky Beeching, Richard Coles and Colin Coward on there too, Bishop Alan Wilson heading the straight allies list, Jeremy Pemberton listed as one to watch and it isn’t too difficult to think of other heroes in the church who haven’t been listed this time around.

    I’ll be looking forward to meeting others who make a difference at the Rainbow List Party which takes place in London this week. Congratulations to everyone on the list and to everyone who was nominated. The world is changing. It isn’t changing fast enough for my liking, particularly in the church, but there’s much to celebrate and much to give thanks for. We shall overcome, one day.

    I remember when I was first named on the Pink List – it meant a lot, to be honest. You don’t get many thankyous for relentlessly going on about LGBT equality issues in the church. To have been named again a couple of times and again today is a great honour.

    My thanks to those who nominated me and those who quietly (and sometimes noisily) support me in this area of my life.

    You could say I’m over the moon.

    You could say I’m somewhere over the rainbow.

9 responses to “Biobank – an ethical question”

  1. Rev Ruth Avatar

    I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

  2. Raspberry Rabbit Avatar

    I haven’t been asked. Radical foreign clerics must not be on the list.

    I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

    RR

  3. Tim Avatar

    Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

    A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

  4. chris Avatar

    We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

  5. asphodeline Avatar
    asphodeline

    Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

  6. kelvin Avatar
    kelvin

    I have not seen Heroes. Is it about eugenics?

  7. asphodeline Avatar
    asphodeline

    Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

  8. kelvin Avatar
    kelvin

    Ah, I see why you associated it with me.

  9. Andrew Avatar
    Andrew

    My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

    I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

    What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

    The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

    If you get one of these invitation say no and tell them why — or better still rip it up.

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