• Watching the House of Lords

    The internet is a wonderful thing and means you can watch all kinds of things you would never have been able to see in the past. Yesterday, I found myself watching the House of Lords discuss whether or not I was fully human.

    At least, that’s what it felt like to me.

    I’m a great believer in debate and understand why things need to be challenged and fought over and argued through. It is right and proper that parliamentary processes run their course. But can you imagine what it feels like for me to watch that being done over the Equal Marriage legislation. This week it is the Westminster legislation and soon it will be the Holyrood legislation.

    Once you’ve accepted that the right to marry a partner of your chosing without regard to gender is a human right, it is as though people are arguing over your very humanity.

    Some people go mad, of course – both victims and perpetrators.

    In many ways it would be easiest to turn off the stream from the House of Lords. It would be so much easier not to see Bishops from the Church of England saying such calculated and vile things about one.  The script that seems to be coming from them this week is “The church hasn’t been nice to gay people. Perhaps it should be nicer. But I’m still not going to support equality for gay people.”  What makes it so horrible is that it is done with knowledge aforethought.

    However, it is almost impossible not to watch it. It is a fascinating, almost sinister, watch.

    This argument is only going in one direction.

    This video from the Irish campaign for marriage equality still rings true at the moment though.

    [Memo to self: Don’t forget to ask every candidate in next General Election whether or not they are committed to removing the bishops from the House of Lords]

9 responses to “Biobank – an ethical question”

  1. Rev Ruth Avatar

    I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

  2. Raspberry Rabbit Avatar

    I haven’t been asked. Radical foreign clerics must not be on the list.

    I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

    RR

  3. Tim Avatar

    Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

    A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

  4. chris Avatar

    We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

  5. asphodeline Avatar
    asphodeline

    Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

  6. kelvin Avatar
    kelvin

    I have not seen Heroes. Is it about eugenics?

  7. asphodeline Avatar
    asphodeline

    Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

  8. kelvin Avatar
    kelvin

    Ah, I see why you associated it with me.

  9. Andrew Avatar
    Andrew

    My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

    I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

    What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

    The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

    If you get one of these invitation say no and tell them why — or better still rip it up.

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