What is in Kelvin's Head?

Our Cynicism

07/03/2013

I think we had a reasonably good day at the Diocesan Synod last weekend. A large part of the day was given over to discussion about poverty, welfare reforms and the consequences of government policy.

The only thing that started to make me feel a little uncomfortable is something which has been getting to me in a number of gatherings recently – what feels like a disconnect between decent people and the political process.

I was co-facilitating the large group discussion on Saturday afternoon and was working pretty much to a script. I found some questions arising in me though that went neither asked nor answered.

I wanted to stop the discussion for a moment and ask, “How many people here feel they don’t trust politicians to make the right decisions?”

It isn’t possible to be certain but I suspect from what I was hearing discussed in other parts of the day, that it would be a quite a strong majority of the people there.

I’d have followed it up with a supplementary question, “How many of us have written to or contacted an MP or MSP in the last six months either about the topics under discussion or about anything else relating to government policy”.

Would as many hands have been raised?

All of which leads me to wonder whether the repeated scandals in our institutions seem so compelling to watch unfold because by watching them we feel that it all must be someone else’s fault. If the poor are hungry – it must be the fault of politicians. If I feel uncomfortable by the manner in which the media does its work it must be the fault of journalists. If the economy can’t look after our vulnerable it must be because of the bankers and not my low taxes.

I’m not saying that we should expect anything less than the highest standards in public life.

I am suspecting that in order to achieve them we need to be more than mere spectators.

bankers, poverty, public life

9 responses to “Biobank – an ethical question”

Rev Ruth

25/10/2007

I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

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Raspberry Rabbit

25/10/2007

I haven’t been asked. Radical foreign clerics must not be on the list.

I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

RR

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Tim

25/10/2007

Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

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chris

25/10/2007

We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

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asphodeline

25/10/2007

Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

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kelvin

25/10/2007

I have not seen Heroes. Is it about eugenics?

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asphodeline

26/10/2007

Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

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kelvin

26/10/2007

Ah, I see why you associated it with me.

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Andrew

19/03/2008

My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

If you get one of these invitation say no and tell them why — or better still rip it up.

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