• Guest Post: At Home Among the Dissenters – John McLuckie

    The Rev John McLuckie is about to return to Scotland following several years working in England. In this guest post he reflects on his experience of the Church of England. Do feel free to respond to what John has written below in the comments and check out his blog at http://justluckie.typepad.com

    On the weekend of the celebrations to mark the Queen’s diamond jubilee, I decided that I wasn’t in the mood for the kind of civic religion I knew I would find in my local Church of England parish so I went to our local Quaker meeting instead. I enjoyed it so much that I have been going there regularly ever since.  I enjoy the silence and the gently mystical instincts of Friends, but also their testimony to simplicity, equality and peacemaking.  As an Anglican priest, this seems like a slightly irresponsible thing to do, but I think that this choice says a lot about how I perceive the differences between the context and ethos of the church in which I was ordained – the Scottish Episcopal Church – and the one I currently belong to – the Church of England.

    In fact, I don’t work for the Church of England but for the NHS as a chaplain in a specialist cancer hospital.  I recognise that this is a privileged position in at least two ways: firstly I feel privileged to work in a place where I can explore matters of the spirit with people who would not normally have anything to do with a church, including people of other world faiths; secondly, I am, in part, able to occupy this position by virtue of the privileged relationship with the state enjoyed by the Church of England.  I have no doubt that this relationship is changing, but am not skilled in the arts of predicting the future so would not dare to hazard a guess as to how it will look in a generation’s time.  What is clear to me is that the C of E takes its public role very seriously and I deeply respect the skill and intelligence with which so many of its members, lay and ordained, interact with society at all its levels, civic, cultural and communal.  However, it is also clear to me that the C of E is not alone in this commitment, even if it does sometimes imagine that it is.  The truth is that there is another story about the place of Christian faith in English life and culture and my sojourn with the Society of Friends gives a clue about it.
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9 responses to “Biobank – an ethical question”

  1. Rev Ruth Avatar

    I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

  2. Raspberry Rabbit Avatar

    I haven’t been asked. Radical foreign clerics must not be on the list.

    I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

    RR

  3. Tim Avatar

    Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

    A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

  4. chris Avatar

    We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

  5. asphodeline Avatar
    asphodeline

    Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

  6. kelvin Avatar
    kelvin

    I have not seen Heroes. Is it about eugenics?

  7. asphodeline Avatar
    asphodeline

    Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

  8. kelvin Avatar
    kelvin

    Ah, I see why you associated it with me.

  9. Andrew Avatar
    Andrew

    My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

    I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

    What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

    The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

    If you get one of these invitation say no and tell them why — or better still rip it up.

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