• Revised Commenting Policy

    I’ve posted something like this before but have had to add the final bullet point today. (And have today decided not to allow any further comments from the offender who caused me to add this last point. It seems to me that he has been warned enough).

    The following types of comments will be deleted without question.

    • Comments which appear to be legitimate but whose posters’ details point to porn sites.
    • Comments which contain homophobic epithets. I’m open to intelligent discussion but I’m not running a site which allows people to get away with silly name calling.
    • Comments which claim to prove something by quoting a single verse taken out of context from the Bible. Scripture is too precious to me to allow that. This is a place where the Bible is loved and honoured and treasured. Comments which use it as a weapon are unwelcome.
    • Comments promoting one Bible translation because all the rest are flawed. Like quite a few people who comment here, my Greek and Hebrew are a bit rusty. However, it was worth learning them as I can now make up my own mind about such matters. Go thou and study likewise.
    • Comments promoting or trying to raise money for particular missionary societies.
    • Comments disparaging women and in particular comments which undermine my female colleagues. I learn about God from them.
    • Comments trying to explain Penal Substution as a theory of Atonement. I know what it means. I know how it works. We’ve already established that like most Christian people I don’t believe in it. It gets boring if you try to explain it to me again.
    • Comments in which those of us who are gay are likened to murderers either in the eyes of the commenter or in the eyes of God. To be honest, when it becomes that offensive, I don’t think we are talking enough of the same language for me to want to bother carrying on listening. I’m also not in the business of providing space for that kind of rhetoric. Those who want to make such comments can do so on their own blogs but not on mine.

    As I’ve repeatedly said before, I like an intelligent argument and tend to adopt this policy as much for the sake of those others who like a sane corner of the web as for myself.

    [Most] Comments welcome.

9 responses to “Biobank – an ethical question”

  1. Rev Ruth Avatar

    I’ve been asked too. And I got so excited – you know how I love all things medical. My mind had already raced off into the realms of them finding that I had some mysterious disease… But now that you put it like that, I guess I’d better give it some more thought.

  2. Raspberry Rabbit Avatar

    I haven’t been asked. Radical foreign clerics must not be on the list.

    I’d be hesitant to do it anyway. Too much information is being stored about us in anticipation of the day when it might prove useful. Best to keep your head down.

    RR

  3. Tim Avatar

    Eeek. I saw the phrase “Do you want to do something good today? Not just for yourself, but for our children and our children’s children?” near the top of the page and instantly the thought occurred, “what’s the potential cost? Where are the privacy controls?” Not as though anyone’s asked me anyway, but that sort of thing worries me from the outset too.

    A little more investigation shows http://www.ukbiobank.ac.uk/faqs/confidentiality.php , particularly #5 etc; it seems too vague, just a gloss to placate the masses. I don’t want `computers unconnected to the internet’; I’d want a guarantee that they never will be, that no floppy disks or other methods will result in data coming off them, and that they’re well secured in a bunker somewhere.

  4. chris Avatar

    We’re involved. My sister-in-law first; she asked my husband; we discussed it and decided the potential for knowledge and research into – for example – the hereditary factor in clinical depression – made it something we wanted to do. Our sons have also expressed a willingness to participate. I personally don’t care about what happens to my DNA (other than its continuation in my family!) and if some good can come out of it then that’s just fine. I trust scientists every bit as much (or as little) as I trust anyone else.

  5. asphodeline Avatar
    asphodeline

    Have you seen Heroes???? Sounds like a sneaky plot to find more 🙂

  6. kelvin Avatar
    kelvin

    I have not seen Heroes. Is it about eugenics?

  7. asphodeline Avatar
    asphodeline

    Ah. It has a hint of eugenics. Part of the plotline involves some form of research into the DNA of people with supernatural powers!

  8. kelvin Avatar
    kelvin

    Ah, I see why you associated it with me.

  9. Andrew Avatar
    Andrew

    My wife I also each received one of the so called invitations today, my first reaction was anger over the wording of the invitation which by telling me I have a “provisional appointment” assuming I am gullible enough to fall for the use of false authority syndrome.

    I am really concerned a lot of less literate people will not fully understand the “invitation” and assume it something they have to do.

    What really makes my blood boil is the that even if you don’t want to take part you have to reply to get your name removed from the records, this raises real civil liberties issues.

    The thing is if I had been asked to participate in I a nice way I would have been very keen to do so, however the whole tone of the letter stinks of authoritarianism and reminds me of the kind of thing the Nazis were doing in the mid 1930s.

    If you get one of these invitation say no and tell them why — or better still rip it up.

Leave a Reply

Your email address will not be published. Required fields are marked *

Previous Posts

  • Advent is Nigh

    Hard to believe that I am chosing Advent hymns o­nce again. Choosing hymns is hard most of the year, but not right now. Advent has good music and some very good hymns, but not many and it o­nly lasts four weeks. They slot in pretty easily.

  • Book Club

    A good meeting of the Book Club last night, discussing Iris Murdoch's The Bell. I am not sure that we ever decided what the Bell itself represented, if anything, but the conversation along the way was interesting.  I was the o­nly man there, as usual. Do men read fiction?Part of the discussion became focussed o­n…

  • Old Skills

    For reasons too complicated to go into here, I need to revive computer programming skills that I last used 20 years ago. I have a particular task, to do with mapping the local council wards, which I think can o­nly be perfomed using Prolog. I was always fascinated with this logic based language but never terribly competent.…

  • Reaping the Whirlwind

    I am interested in a metaphor that is doing the rounds at the moment. Clare Short has said that Tony Blair is now reaping the whirlwind. This is in relation to the terrorist attacks that seem to have become more likely since the war in Iraq.The metaphor comes from the Bible (Hosea 8:7) and is…